Sydney - "I was born with a congenital diaphragmatic hernia- basically a hole in the diaphragm. It’s a life-threatening condition for infants. Part of the condit...
Wednesday, July 23, 2008
"Ava's Awareness Walk"
We held our first annual, "Ava's Awareness Walk" at our local hospital. It was awesome to see so many out supporting Congenital Diaphragmatic Hernia Awareness Day with us! We know how important it is to raise Awareness to this very life threatning birth defect that still takes 50% of all babies that are diagnosed with it. Thanks to all that donated. It was a perfect day to honor Ava and all her friends!
- I was blessed to have three beautiful daughters of course by my wonderful husband Brian. We traveled a very difficult road when we found out our third daughter, Ava had a life threatning birth defect called Congenital Diaphragmatic Hernia. This turned all of our lives upside down. We have learned that life is a precious gift from God and we should treasure each and every second we have with our loved ones.